These Data Vignettes were developed by the National Center for Cultural Competence to put faces and names to the data from the National Survey of Children with Special Health Care Needs. The stories are composites from many families and do not represent any specific family or child.
Ways to Use the Data Vignettes
These vignettes can be used to increase understanding of racial and ethnic disparities in achieving the Maternal and Child Health Bureau’s Six Core Outcomes for Children and Youth with Special Health Care Needs. They can be used for personal learning and development or to augment curricula and training activities for health care providers, policy makers, public health professionals, researchers and agency staff. Each vignette contains links to additional resources related to concepts discussed and a set of questions for discussion.
The Gonzalez Family—Impact on the Family Caring for a Child with Special Health Care Needs
Juan and Silvia had little experience with the health care system in the United States. In their home country, people only went to the doctor when they were very sick.
Tammy and William Green
Tammy’s son, William, was born very early—at 29 weeks of her pregnancy. He spent weeks in the intensive care nursery. Tammy had to return to work before he could come home.