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Sudden Infant Death Syndrome and
Other Infant Death (SIDS/ID) Project

Mother and Child

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bullet Purpose of the Project
 

Announcements

New! Building Integrated Systems to Address Sudden Unexpected Infant Death just released!

This monograph describes the potential of utilizing a systems integration approach to providing effective, well-resourced and culturally and linguistically competent SIDS and Other Infant Death risk reduction and bereavement support services. It details the experience of the SIDS/ID program in Michigan as an example of the integrated systems approach.

Promising Practices for Cultural and Linguistic Competence in Addressing Sudden Infant Death Syndrome and Other Infant Death

Read about innovative approaches to addressing risk reduction that reflect the values and principles of cultural and linguistic competence from SIDS/ID programs. Each promising practice story shares the health concern that sparked the approach, the strategy chosen, the action taken and why it works. In addition, the NCCC shares its perspective on why this practice was chosen. Contact information is included so that other programs can connect with the project staff who are willing to share ideas, curricula, or materials.

   

Despite a decline in overall infant mortality in the United States and an approximately 50% initial decline in reported SIDS deaths since the institution of the Back to Sleep Campaign, there continue to be significant racial and ethnic disparities in the rates of infant death. Thus the families needing both bereavement support and risk reduction efforts are more likely to be culturally, racially and ethnically diverse.

The National Center for Cultural Competence (NCCC) SIDS/ID project is designed to impact state and local SIDS/ID programs, family support and advocacy organizations, national organizations related to SDIS/ID issues and the three other National SIDS/ID Centers funded by the Maternal and Child Health Bureau (MCHB). Activities of the SID/ID Project are designed to increase the capacity of these programs and organizations to incorporate cultural and linguistic competence into their services and supports, materials and training efforts and community engagement.

bullet Objectives of the Project

  • Collaboration Work with each of the MCHB funded national SIDS/ID Centers to increase the capacity for cultural and linguistic competence within the systems and programs addressing SIDS/ID.
  • Web-based Technology Use web-based technology to provide technical assistance to the stakeholders and constituency groups concerned with SIDS/ID to increase their capacity to incorporate cultural and linguistic competence.
  • Knowledge Development and Dissemination Contribute to the body of knowledge on culturally and linguistically competent evidence-based and promising practices related to SIDS/ID.
  • Community of Learners Support existing and new communities of learners to incorporate culturally and linguistically competent values, policies, structures and practices in SIDS/ID related programs.

bullet What We Do

During the current project period (6/1/05-5/30/09) the SIDS/ID Project will: 

  • Work with the other three MCHB funded national centers to develop a collaborative and integrated set of activities to support the field;
  • Respond to requests for information and technical assistance via a toll free number (1-800-788-2066) and e-mail (cultural@georgetown.edu )
  • Work collaboratively with the National Fetal/Infant Mortality Review Center (NFIMR) to develop cultural and linguistic competence self-assessment for FIMRs.
  • Update information for families about SIDS/ID and family resources available to families who have lost an infant or experienced miscarriage or still birth on the Spanish-language portal of the NCCC website;
  • Expand the on-line resource database on the NCCC website;
  • Identify and promote promising practices  on NCCC website;
  • Maintain and update a pool of consultants on cultural and linguistic competence and brokering consultant pool services for SIDS/ID programs.
  • Provide presentations and exhibits at national and regional meetings;
  • Provide discussion-starting postings on the Project Impact listserv ;
  • Create products and publications  on issues of interest to the field on cultural and linguistic competence.
Contact Information: Phone (202) 687-5503 or (800) 788-2066; TTY: (202) 687-8899; 3300 Whitehaven Street, NW, Suite 3000 Washington, DC 20007-2401 Accessibility Copyright Georgetown University e-mail: cultural@georgetown.edu
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