Genetics and Ethics: Digital Collections
The following
monographs related to ethical, legal and social implications of genetics
research and clinical practice are online:
- United States. Congress. Office of Technology Assessment. THE
HUMAN GENOME PROJECT AND PATENTING DNA SEQUENCES. Unpublished,
draft document. April 1994. 370 p. Table of Contents.
-
United States. Congress. Office of Technology Assessment. THE SURVEY OF GENOME SCIENCE CORPORATIONS. March 1994. 89 p.
- United States. President's Commission for the Study of Ethical Problems
in Medicine and Biomedical and Behavioral Research. SPLICING
LIFE: A REPORT ON THE SOCIAL AND ETHICAL ISSUES OF GENETIC ENGINEERING
WITH HUMAN BEINGS. Washington, DC: President's Commission for
the Study of Ethical Problems in Medicine and Biomedical and Behavioral
Research, 1982. 126 p.
- United States. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. SCREENING AND COUNSELING FOR GENETIC CONDITIONS: A REPORT ON THE ETHICAL, SOCIAL, AND LEGAL IMPLICATIONS OF GENETIC SCREENING, COUNSELING, AND EDUCATION PROGRAMS Washington, DC: U.S. Government Printing Office [GPO], 1983. 122 p.
Through a cooperative
agreement with Duke University's Institute for Genome Sciences and Policy,
North Carolina, the following items are now available full text.
- Eugenics Record Office. BULLETIN No. 10 A: Report of the Committee to Study and to Report on the Best Practical Means of Cutting Off the Defective Germ-Plasm in the American Population. I. THE SCOPE OF THE COMMITTEE'S WORK, by HARRY H. LAUGHLIN, Secretary of the Committee, Cold Spring Harbor, Long Island, New York, February, 1914.
- Eugenics Record Office. BULLETIN No. 10B: Report of the Committee to Study and to Report on the Best Practical Means of Cutting Off the Defective Germ-Plasm in the American Population. II. THE LEGAL, LEGISLATIVE AND ADMINISTRATIVE ASPECTS OF STERILIZATION, by HARRY H. LAUGHLIN, Secretary of the Committee, Cold Spring Harbor, Long Island, New York, February, 1914.
- EUGENICAL STERILIZATION IN THE UNITED STATES: A REPORT OF THE PSYCHOPATHIC LABORATORY OF THE MUNICIPAL COURT OF CHICAGO, by HARRY H. LAUGHLIN, 1922.
- THE GENE WARS, by ROBERT COOK-DEEGAN, 1994.
The “Genetics
Bookshelves” feature a ‘virtual bookshelf’ of monographs
found fulltext at either academic or governmental websites.
- Government Reports on Genetic Research and Practice
- Academic Reports on Genetic Research and Practice
Through a cooperative
agreement with the Hastings Center of Garrison, New York, articles from
its journals, the Hastings Center Report and IRB: Ethics and Human Research
are now available free online. This
QuickBib provides an up-to-date list of such articles.
A related resource
at the Kennedy Institute is the National Bioethics Advisory Commission
digital archive. This
QuickBib lists NBAC reports relevant to genetics.
Citations in
the EthxWeb database link
to tens of thousands of items available at other websites, many of which are available free, online. Remember to check the
box next to “Full text available on-line” before
submitting your search request from any of the three search screens. This
sample
QuickBib lists online books on genetics cited in the EthxWeb database.
Materials on this site are freely available to individual researchers. Any redistribution or commercial use requires written permission of the Institute.
“Genetics Bookshelves” and “QuickBibs” are refreshed twice a month when the database is updated.
