Introduction
Once described as an Aenormous
used book store with volumes stacked on shelves and tables and overflowing
onto the floor@ (Pool, Robert.
1994. Turning an Info-Glut into a Library. Science 266 (7 October):
20-22, p. 20), Internet resources now receive numerous levels of
organization, from basic directory listings to elaborate
Alinks@ (cross-references to other Internet
documents) that flash and glow in the dark. In many ways, the Internet
functions as a direct extension of the traditional library. Following linked
references across various sites is an electronic version of browsing library
stacks, and the serendipitous discoveries made while
Asurfing the Net@ recall the wonders of physically going
Abook-to-book.@ Although many of the Internet=s best aspects augment library
strengths by eliminating physical distance from sources, Net resources pose
unique problems for researchers. It is not always clear who is responsible
for the content of Web documents, when the document was produced, or how
often (if ever) it is updated. Internet resource tools, then, must enable
researchers to identify appropriate resources and to evaluate what they find
when they get there.
Web Research as Taking
ASNAPSHOTS@
Given the Internet=s visual
nature and fluid content, the process of conducting research on the Web has
been likened to taking an informal picture of information on a specific date
at a particular time. This metaphor also conveys the
Azoom-in@ aspect of searching through Web pages
by going from general to specific categories. In the first section of this
Scope Note, National Reference Center for Bioethics Literature
(NRCBL) staff present a snapshot of bioethics resources originally taken
during the spring months of 2000 and updated periodically since then.
Entries are divided into the categories of directories, electronic journals,
full-text documents, news/current awareness, and teaching resources. In the
two subsequent sections, this series of categories is repeated for entries
on a specific topic within bioethicsBgeneticsBand again for general search and
evaluation tools. Where a Web site may contain pages applicable to more than
one category, multiple entries are made for that site with appropriate
information for each category.
Much as telecommunication advances have strengthened the relationship of
patients and providers as partners, the dynamic nature of the Internet
acknowledges that the researcher functions as a librarian whenever accessing
the Web. It is our hope that NRCBL resources not only will enable
researchers to search the Web more efficiently, but also will help them to
evaluate what they find when they get there.
Bioethics in Databases on the Web
From 1973 to 2000, the Kennedy Institute of Ethics produced
BIOETHICSLINE® for the U.S. National Library of Medicine (NLM) as one of
their specialty MEDLARS databases designed to supplement MEDLINE. In 2001,
NLM reorganized its databases: journal records from all specialty databases
were merged with MEDLINE into PubMed, and
book records were combined with NLM's online catalog to create
LOCATORplus. Both of these databases
can be searched at no charge either separately or through NLM's
Gateway.
The inclusion of bioethics citations in PubMed and LOCATORplus has
several advantages. First, unique keywords from the former Bioethics
Thesaurus have been included in Medical Subject Headings (MeSH), the
indexing vocabulary for PubMed and LOCATORplus, thereby enhancing retrieval
of relevant clinical literature by offering more precise terminology
covering ethical issues. Second, there is extensive coverage of
foreign-language materials in NLM databases. Third, NLM databases are
updated daily.
The online catalog for the National Reference Center for Bioethics
Literature (NRCBL)
ETHXWeb, contains citations to journal articles, books and book
chapters, Web documents, audiovisuals, conference proceedings, and
unpublished documents. NRCBL provides reference assistance and searches of
these databases at no charge; requests can be made by submitting an
online search form.
The Web brings all of us closer together, giving us opportunities to
examine approaches to bioethical problems in other countries. The Web pages
of organizations can be consulted for pertinent documents. On a broader
level, some government and academic groups are supporting the collection and
dissemination of bioethics resources worldwide. (Note: many have adopted the
vocabulary of the former Bioethics Thesaurus as the basis for developing
their own indexing languages. The thesaurus has been translated into Dutch,
French, German, Spanish, and Swedish, and a Turkish translation is underway.
Often the vocabulary is enhanced to reflect varying local social, cultural,
legal, and philosophical perspectives.)
Cooperative programs, such as that between the Kennedy Institute and the
Deutsches Referenzzentrum für Ethik in den
Biowissenschaften (DRZE) in Bonn (http://www.drze.de) to share
bibliographic data, will further enhance the retrieval of bioethics
literature internationally. DRZE and other similar centers in Germany and
Europe are working to make databases and online library catalogs available.
The Akademie für Ethik in der
Medizin, George-August-Universität in Göttingen, Germany, an
organization with a long-standing interest in bioethics documentation, added
5,570 documents to the ETHMED database from 1994 through March 1999
(http://www.aem-online.de/main.htm). NRCBL will continue to provide links to
these and to other bibliographic resources at:
http://bioethics.georgetown.edu.
The Categories:
Directories, Electronic Journals, Full-Text Documents, News/Current
Awareness, and Teaching Resources
Reference requests received at NRCBL have informed our choice of the
categories used to organize this Scope Note. Online directories meet
the needs of those who ask AWhere
do I start?@ Directories are lists
of resources accompanied by their links and, sometimes, by brief summaries.
In many ways, the home pages of bioethics organizations, with their
extensive collection of links, function as directories for both the novice
and expert searcher.
Electronic journals are at once the boon and the bane of Internet
existence. When we can access the latest issues of major journals on the Web
while the print copies are still in the mail, we cannot imagine how we ever
functioned without the Internet. When access to the electronic version of a
journal is limited to an institutional subscription not taken by our
university, we fear that the Web may actually restrict rather than expand
access to resources. The Internet=s
initial reputation of being Afree@ to all is changing rapidly. To provide
local access to electronic journals, many publishers provide institutions
with site licenses for the electronic versions of their journals. One
example is Johns Hopkins University Press=s
AProject Muse,@ which provides electronic access to
journals, including the
Kennedy Institute of Ethics Journal, through institutional site
licenses (http://muse.jhu.edu/journals/ken).
To determine which electronic journals you can access, first check with
your local reference librarian. Second, lists of electronic journals are
maintained on the Web (see the electronic journals part of each of the
following sections). For medical journals, PubMed contains links to records
in the National Library of Medicine's online archive,
PubMed Central. In addition,
publishers may provide links to the full-text of their journals for a
specified period (see below, Evaluation and Searching Tools, Electronic
Journals, HardinMD Electronic Showcase). If a publisher does not participate
in direct links from PubMed, NLM=s
Loansome Doc
document delivery service enables searchers to place online orders for
copies of articles.
The posting of full-text documents on the Internet is growing as a result
of improvements in Web design software and server storage capacity.
National Digital Library
projects are underway at various government agencies (http://www.osti.gov/inforum2000/)
in the United States, and bioethics commissions, both in the U.S. and
abroad, concentrate on making their reports available full-text.
Building on an original strength of the Internet, rapid communication
among researchers and other groups is enhanced by online discussion groups
and by electronic mailing lists commonly called
Alistservs@ for list servers. Searchable listserv
archives are a valuable and frequently overlooked research tool. For meeting
and conference information, bioethics organizations often maintain listings
of local events, and for international coverage many link to the
International Calendar
of Bioethics Events (see below, Bioethics on the Web,
News/Current Awareness--Bioethics).
Teaching resources on the Web can either facilitate the preparation of
course materials, or serve as course materials themselves. Syllabi for some
courses go beyond the usual outline and bibliography to include links to
full-text documents and online videos. As with libraries, the Internet can
act both as an extension of the classroom and as a unique learning
environment of its own. The effect of cyberspace on learning and on research
is unclear, but with the development of evaluation criteria for Web sites, a
critical stance toward information sources becomes the common ground for the
further elaboration of all research and study.
Return to Table of Contents
BIOETHICS - GENERAL
Directories
- Site: ASBH
Organization: American Society for Bioethics and Humanities (ASBH)
Location: Glenview, IL
Country: United States
WWW: http://www.asbh.org
- As the professional society for bioethics, ASBH’s site maintains a
list of affinity groups (for specialties such as research ethics, residency
education, and hospice & palliative medicine); the full-text of
syllabi collected for its task force on graduate medical education;
customized searches linked to Amazon.com for acquiring bioethics-related
books; and an extensive list of resource links categorized by specialty
(such as academic centers, government and public policy, law, and history
of medicine.
-
- Site: Association for Practical
and Professional Ethics (APPE) Organization: Indiana University
Location: Bloomington, IN
Country: United States
WWW:http://www.indiana.edu/~appe/
- As a membership organization devoted to the interdisciplinary study
and teaching of practical and professional ethics, APPE's web site provides
access to its publication list, program descriptions, and bulletin board.
-
- Site: Bioethics
Resources for Meeting JCAHO Requirements
Organization: Medical College of Wisconsin, Center for the Study of
Bioethics
Location: Milwaukee, WI
Country: United States
WWW: http://www.mcw.edu/bioethics/presentation.html
- To facilitate compliance with the Joint Commission for the Accreditation
of Hospital Organizations (JCAHO) ethics standards, this site links
to pertinent online articles and reports, JCAHO materials, and Center
for the Study of Bioethics online course materials.
-
- Site: Bioethics
Resources on the Web
Organization: National Institutes of Health
Inter-Institute Bioethics Interest Group (BIG)
Office of Extramural Research (OER)
Location: Bethesda, MD
Country: United States
WWW: http://www.nih.gov/sigs/bioethics/general.html
- The brief annotations in this directory are divided into the five
categories: Bioethics at NIH, General Resources, Organizations, Federal
Bioethics Resources, and Specific Topics (Biomedical Research, Genetics,
and Clinical Practice).
-
- Site: Center for Bioethics
Organization: University of Minnesota
Center for Bioethics
Location: Minneapolis, MN
Country: United States
WWW: http://www.med.umn.edu/bioethics
- In addition to lists of Web sites for other bioethics organizations,
this site also links to journals, publishers, newspapers, and Minnesota
state government sources.
-
- Site: National
Reference Center for Bioethics Literature (NRCBL)
Organization: Kennedy Institute of Ethics
Georgetown University
Location: Washington, DC
Country: United States
WWW: http://bioethics.georgetown.edu/linksorgs.htm
- This site contains entries from NRCBL=s database of organizations and provides
links to other bioethics sites.
-
- Site: Interfakultären
Zentrum für Ethik in den Wissenschaften / Interdepartmental Center for
Ethics in the Sciences and Humanities (IZEW)
Organization: University of Tübingen, Interdepartmental Center for Ethics
in the Sciences and Humanities
Location: Tübingen
Country: Germany
E-mail: izew@uni-tuebingen.de
WWW: http://www.izew.uni-tuebingen.de
- This site contains an extensive set of links to bioethics organizations
and agencies in Europe, Asia, and North America.
Return to Table of Contents
Electronic Journals
- Site:
Bioethics Journal Resources on the Web
Organization: National Institutes of Health
Inter-Institute Bioethics Interest Group (BIG)
Office of Extramural Research (OER)
Location: Bethesda, MD
Country: United States
WWW: http://www.nih.gov/sigs/bioethics/bioethicsjournals.html
- This listing covers both directories of electronic journals and specific
journal homepages.
Return to Table of Contents
Full-Text Resources
- Site:
Joint Centre for Bioethics
Organization: University of Toronto
Location: Toronto, Ontario
Country: Canada
E-mail: gillian.bentley@utoronto.ca
WWW: http://www.utoronto.ca/jcb/research/key_research.htm
- One feature of this site is a collection of full-text documents
organized by topics such as child health, organizational ethics, research
ethics, and global ethics.
-
- Site: Council
of Europe, Bioethics Home Page
Organization: Council of Europe
Directorate of Legal Affairs,
Bioethics Section
Location: Strasbourg
Country: Austria
E-mail: carlos.desola@coe.int
WWW: http://www.coe.int/T/E/Legal_affairs/Legal_co-operation/Bioethics/
- This site contains the full-text of The
Convention on Human Rights and Biomedicine, as well as historical
documents relating to its development. Also available are other Council
of Europe texts on bioethics, such as the Report
on Human Artificial Procreation.
-
- Site: National Consultative
Ethics Committee for Health and Life Sciences
Organization: French National Consultative Ethics Committee for Health
and Life Sciences
Location: Paris
Country: France
E-mail: contact@comite-ethique.fr
WWW: http://www.ccne-ethique.fr
- Full text of the entire list of opinions of the French national
bioethics commission, going back to number 001 in 1984, are available
in both French and English. In addition, this website has one of the
best collections of links to international bioethics government bodies.
-
- Site:
Eubios Ethics Institute
Organization: Eubios Ethics Institute
Location: Christchurch
Country: New Zealand
and
Location: Tsukuba Science City
Country: Japan
E-mail: Macer@sakura.cc.tsukuba.ac.jp
WWW: http://www.csu.edu.au/learning/eubios/
- This site has links to full-text documents from international agencies
such as UNESCO and HUGO, conference and symposia proceedings, and
the electronic version of the Eubios Ethics Institute Newsletter,
which contains annotations to numerous journal articles.
-
- Site:
Library of Bioethics and Medical Humanities Texts and Documents
Organization: University of Buffalo, Center for Clinical Ethics and
Humanities in Health Care
Location: Buffalo, NY
Country: United States
E-mail: wear@acsu.buffalo.edu
WWW: http://wings.buffalo.edu/faculty/research/bioethics/texts.html
- This electronic library features classic bioethics texts such as
The
Belmont Report: Ethical Principles and Guidelines for the Protection
of Human Subjects in Research, encyclicals of the Roman Catholic
Church on bioethical issues, and the Advisory
Committee on Human Radiation Experiments: Final Report. The
site also links to bioethics reports from state and federal agencies.
-
- Site: National Bioethics
Advisory Commission
Organization: National Bioethics Advisory Commission (NBAC) (defunct)
Location: Rockville, MD
Country: United States
WWW: http://bioethics.georgetown.edu/nbac/
- NBAC was established by a Presidential executive order in 1995;
its charter expired on October 3, 2001. NBAC=s reports and meeting transcripts
are archived and available full text on the site of the National Reference
Center for Bioethics Literature.
-
- Site: Nuffield Council
on Bioethics
Organization: Nuffield Council on Bioethics
Location: London
Country: Great Britain
E-mail: bioethics@nuffieldfoundation.org
WWW: http://www.nuffield.org/bioethics/
- The full text of the Council=s
reports and discussion papers are available.
-
- Site: Online Ethics
Center for Engineering and Science
Organization: Case Western Reserve University
Location: Cleveland, OH
Country: United States
WWW: http://onlineethics.org/index.html
- This site contains the full text of codes of ethics, case studies,
and essays on research ethics.
-
- Site: OTA Legacy
Organization: Princeton University
Location: Princeton, NJ
Country: United States
E-mail:
ota@princeton.edu
WWW: http://www.wws.princeton.edu/~ota/
- This electronic archive of the publications of the Congressional
Office of Technology Assessment (OTA)(which closed on September 29,
1995) also contains a history of the OTA and full-text articles on
its importance.
Return to Table of Contents
News/Current Awareness
- Site: Bioethics
and Today=s News
Organization: The Johns Hopkins University, Bioethics Institute
Location: Baltimore, MD
Country: United States
E-mail: bioethic@jhsph.edu
WWW: http://www.med.jhu.edu/bioethics_institute/
- The Bioethics Institute home page features a list of recent news
stories in bioethics with links to electronic versions of these
stories in the newspapers where they have been published. The citations
and links for these articles are retained in the Archives section
of the site.
-
- Site: Bioethics Discussion
Pages
Organization: University of Southern California, Health Sciences
Center
(Personal Home Page of Dr. Maurice Bernstein)
Location: Los Angeles, CA
Country: United States
E-mail:
DoktorMo@aol.com
WWW: http://www-hsc.usc.edu/~mbernste/
- Moderated by Maurice Bernstein, M.D., this site features a general
discussion group entitled APot-Pourri,@ discussion pages for specific
topics, and polls on various ethical issues prompted by topics raised
by participants. Recently modified entries are highlighted with
a balloon icon.
-
- Site: Bioethics.Net
Organization: University of Pennsylvania
Center for Bioethics
Location: Philadelphia, PA
Country: United States
E-mail: mcgee@mail.med.upenn.edu
WWW: http://www.bioethics.net
- One feature of this site is its summaries of recent news reports
on bioethical issues, which are linked through Yahoo!News, to full-text
articles on the electronic sites for newspapers, such as the New
York Times; network news, such as ABCNEWS.com; and wire services,
such as Reuters.
-
- Site: BioethicsLaw-L
Organization: Association of American Law Schools
Section on Law, Medicine, Health Care
Location: Washington, DC
Country: United States
E-mail: listserv@lawlib.wuacc.edu
WWW: http://www.aals.org/
- This electronic mailing list focuses on the intersection of bioethics
and the law. To subscribe, send an e-mail message to: listserv@lawlib.wuacc.edu
with the message: subscribe bioethicslaw-L followed by your name.
-
- Site: BIOMED-L
E-mail: listserv@LISTSERV.NODAK.EDU
- Begun by Michelle Francl, this electronic mailing list is devoted
to discussing general topics in bioethics. To subscribe, send an
e-mail message to
listserv@listserv.nodak.edu and in the body of the message put:
subscribe BIOMED-L.
-
- Site: International
Calendar of Bioethics Events
Organization: University of Medicine and Dentistry of New Jersey
Robert Wood Johnson Medical
School
Division for Medical Humanities
Location: Piscataway, NJ
Country: United States
E-mail: rmcintyr@umdnj.edu
WWW: http://www2.umdnj.edu/ethicweb/upcome.htm
- Maintained by Russell L. McIntyre, Th.D., this listing of upcoming
meetings, conferences, and symposia is updated on a regular basis.
-
- Site: MCW-Bioethics
Organization: Medical College of Wisconsin
Center for the Study of Bioethics
Location: Milwaukee, WI
Country: United States
E-mail: listproc@post.its.mcw.edu
WWW: http://www.mcw.edu/bioethics/
- This electronic mailing list facilitates the exchange of opinions
and information among bioethicists. To subscribe, send an e-mail
message to listproc@post.its.mcw.edu
and in the body of the message enter the phrase: subscribe mcw-bioethics
Firstname Lastname.
-
- Site:
Satellite News Conference List
Organization: Medical College of Wisconsin
Center for the Study of Bioethics
Location: Milwaukee, WI
Country: United States
E-mail: buchanan@mcw.edu
WWW: http://www.mcw.edu/bioethics/presentation.html
- Moderated by Elizabeth Buchanan, this electronic mailing list
facilitates discussion of the Joint Commission for the Accreditation
of Hospital Organizations (JCAHO) ethics standards and related issues.
Return to Table of Contents
Teaching Resources
- Site: Distance
Learning Programs of Study
Organization: Medical College of Wisconsin
Center for the Study of Bioethics
Location: Milwaukee, WI
Country: United States
WWW: http://www.mcw.edu/bioethics/depage.html
- This site provides course descriptions and online lectures for
the Center=s distance
learning program.
-
- Site: Ethics
Committee Core Curriculum
Organization: University of Buffalo
Center for Clinical Ethics and Humanities in Health Care
Location: Buffalo, NY
Country: United States
E-mail: wear@acsu.buffalo.edu
WWW: http://wings.buffalo.edu/faculty/research/bioethics/
- This site contains the electronic version of Western New York
Institutional Ethics Committee Network=s Orientation Manual for Ethics
Committee Members.
-
- Site: Ethics Updates
Organization: University of San Diego
Values Institute
Location: San Diego, CA
Country: United States
WWW: http://ethics.acusd.edu
- Video and print resources for teaching ethics and bioethics are
available. Resources are categorized by subjectBe.g., Aristotle and virtue ethics,
environmental ethics, and military ethics--and link to full-text
versions of many classic texts in the field.
-
- Site:
Medical Humanities Syllabi, Hippocrates Project
Organization: New York University
Department of Medical Humanities
Location: New York, NY
Country: United States
WWW: http://endeavor.med.nyu.edu/lit-med/syllabi.for.web/syllabi.menu.page.html
- The content of this collection of syllabi is searchable. The site
also contains the Literature, Arts, and Medicine Database, with
audio links to literature and medicine texts.
-
- Site: Syllabus
Exchange Catalog
Organization: National Reference Center for Bioethics Literature,
Kennedy Institute of Ethics
Georgetown University
Location: Washington, DC
Country: United States
E-mail: bioethics@georgetown.edu
WWW: http://bioethics.georgetown.edu/publications/syllabus/
- This catalog of descriptions of bioethics syllabi dating back
to 1986 contains some links to online syllabi currently on the Web.
The catalog descriptions are categorized by level of instruction.
-
- Site:
Task Force on Graduate Medical Education in Bioethics and Humanities
Organization: American Society for Bioethics and Humanities
Location: Glenview, IL
Country: United States
WWW: http://www.asbh.org/Doukas/
- To facilitate the ethics education goals of the Accreditation
Council for Graduate Medical Education (ACGME), this ASBH task force
collects syllabi and makes them available online at no charge.
-
- Site: Videography
Organization: University of Tennessee at Knoxville
Philosophy Department
Location: Knoxville, TN
Country: United States
WWW: http://web.utk.edu/~ggraber/videos.htm
- This online bibliography is an alphabetic listing by title of
videos that may be useful in bioethics education. Each citation
contains a brief description, and producer information must be obtained
by the University of Tennessee online catalog using the call number
provided. This list was updated in February 1998.
Return to Table of Contents
GENETICS SNAPSHOT
Directories
- Site: CDC Genomics and
Disease Prevention
Organization: Centers for Disease Control and Prevention (CDC),
U.S. Department of Health and Human Services
Location: Atlanta, GA
Country: United States
WWW: http://www.cdc.gov/genomics/
- The site of the CDC's Office of Genomics and Disease Prevention
contains links to full-text articles and reports on genetics and
public health and on population research. The site also links to
a current awareness service for professionals.
-
- Site: Council for Responsible
Genetics (CRG)
Organization: Council for Responsible Genetics
Location: Cambridge, MA
Country: United States
WWW: http://www.gene-watch.org/
- In addition to their newsletter, CRG=s page connects to political, medical,
consumer, and scientific organizations concerned with genetic research,
as well as their own projects such as the Genetics and the Law database.
-
- Site:DOEgenomes.org
Organization: U.S. Department of Energy Office of Science
Location: Washington,DC
Country: United States
WWW: http://doegenomes.org/
- This gateway facilitates access to Human Genome Project educational
and archival documents, materials produced by Genomics.GTL (follow-up
research after the completion of the Human Genome Project), and
information concerning the Microbial Genome Program underway since
1994.
-
- Site:GeneTests
Organization: University of Washington
Location: Seattle, Washington
Country: United States
WWW: http://www.genetests.org
- Funded by the National Institutes of Health, this site in an international
directory to genetic testing clinics and laboratories. Also included
are patient education materials on various genetic diseases, and
a glossary of terms.
-
- Site: genome.gov
Organization: National Human Genome Research Institute (NHGRI)
National Institutes of Health
Location: Bethesda, MD
Country: United States
WWW: http://www.nhgri.nih.gov/
- As the site for the completed Human Genome Project, NHGRI's genome.gov
features links to the continuing international genome sequencing
programs, clinical research centers, and Ethical, Legal and Social
Implications Program (ELSI) projects and publications.
One NHGRI project is the Policy
and Legislation Database containing the full-text of federal and
state regulations on such issues as genetic testing, patenting, informed
consent and confidentiality.
- Site: GeneWatch UK
Organization: GeneWatch UK
Location: Buxton, Derbyshire
Country: Great Britain
E-mail: gene.watch@dial.pipex.com
WWW: http://www.genewatch.org
- Focusing on genetics and agriculture, this site has links to European
and North American government agencies, local and international
political action organizations, and alternative press publications
concerning genetically-modified organisms.
Return to Table of Contents
Electronic Journals
- Site:
Genetics, Genomics and Biotechnology Journals
Organization: MedBioWorld
Location: Washington, DC
Country: United States
WWW: http://www.medbioworld.com/
- This site contains links to an extensive list of genetics journals,
some of which are in the collections of professional publishers
and therefore are fee-based; others are available at no charge.
Return to Table of Contents
Full-Text Resources
- Site: DOE Information Bridge
Organization: Department of Energy
Office of Scientific and Technical Information
Location: Oak Ridge, TN
Country: United States
E-mail: OSTIWebmaster@apollo.osti.gov
WWW: http://www.osti.gov/bridge/
- This site includes bibliographic records for and fully searchable
full-text of more than 54,000 DOE-sponsored reports published since
January 1995.
Return to Table of Contents
News/Current Awareness
- Site: Ethics and
GeneticsBA Global Conversation
Organization: University of Pennsylvania
Center for Bioethics
Location: Philadelphia, PA
Country: United States
E-mail: mcgee@mail.med.upenn.edu/genetics/
WWW: http://www.bioethics.net
- This feature enables users to access a number of full-text articles
on genetic topics, comment on them online, and, if others are simultaneously
commenting on the same article, engage in a chat with them. These
comments are archived and available for display.
-
- Site: Forum
Gentechnik
Organization: University of Tübingen
Interfaculty Center for Ethics in the Sciences and Humanities
Location: Tübingen
Country: Germany
E-mail: hdfrey@uni-tuebingen.de
WWW: http://www.zum.de/schule/Foren/biotech/
- This forum is a discussion group for scientists to exchange information
on genetics research.
-
- Site: GE-NEWS
- International News on Genetic Engineering in Agriculture
Organization: Mothers for Natural Law
The Natural Law Party
Location: Fairfield, IA
Country: United States
E-mail: ge-news-subscribe@egroups.com
WWW: http://www.safe-food.org/-news/welcome.html
- This bi-weekly news service provides brief abstracts of recent
articles on genetic engineering published in newspapers, wire services,
and academic journals. The archives for this service are maintained
online and can be displayed by date.
Return to Table of Contents
Teaching Resources
- Site: Dolan DNA Learning Center
Organization: Cold Spring Harbor Laboratory
Location: Cold Spring Harbor, NY
Country: United States
WWW: http://www.dnalc.org/
- In addition to amimated educational materials on molecular biology,
site contains an archive
of the American eugenics movement as well as simulated gene sequencing
exercises.
-
- Site:
Heredity, Health and Humanity
Organization: Beloit College
Biology Department
Location: Beloit, WI
Country: United States
WWW: http://www.beloit.edu/~biology/genethics/ethics.homepage.html
- This site features online resources developed for a BioQUEST summer
conference co-sponsored by the Howard Hughes Medical Foundation
and Beloit College.
-
- Site:
Human Genome Project Education Resources
Organization: Human Genome Project
Department of Energy
Location: Oak Ridge, TN
Country: United States
WWW: http://www.ornl.gov/sci/techresources/Human_Genome/education/education.shtml
- As part of the U.S. Department of Energy's genome gateway, DOEGenomes.org,
this page contains full-text documents such as Genomics and
Its Impact on Science and Society: The Human Genome Project and
Beyond and Your Genes, Your Choices, as well as the
Genome Education Modules produced as part of the Biological
Sciences Curriculum Study (BSCS). Also included are video and audio
files (PBS) that can be downloaded for educational purposes, and
the archives of their Human Genome News newsletter.
-
- Site: National
Information Resource on Ethics and Human Genetics
Organization: National Reference Center for Bioethics Literature
Kennedy Institute of Ethics
Georgetown University
Location: Washington, DC
WWW: http://bioethics.georgetown.edu/nirehg/
- This site contains annotated bibliographies on genetic topics,
full-text government reports, and a searchable database on ethics
and genetics.
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EVALUATION AND SEARCHING TOOLS
Electronic Journal Lists
- Site: Periodici
Biomedici/Biomedical Journals
Organization: Biblioteca Centrale dell'Area Biomedica
Università degli Studi di Cagliari
Cittadella Universitaria di Monserrato
Location: Monserrato
Country: Italy
WWW: http://aib.it/aib/commiss/cnur/peb/peb.htm3
- This comprehensive list of international journals identifies whether
the specified links access a periodical=s table of contents pages, the
full-text of sample articles, or the full-text of the entire publication.
The site also contains links to electronic journal directories for
other countries, such as France and Germany.
-
- Site: HardinMD
E-journal Showcase
Organization: Hardin Library for the Health Sciences
University of Iowa
Location: Iowa City, IA
Country: United States
WWW: http://www.lib.uiowa.edu/hardin/md/ej.html
- This directory of electronic journals serves two purposes: to
link to the electronic version of popular peer-reviewed medical
journals such as JAMA and BMJ, and to display
the previous year=s citations
from each electronic journal that have appeared in the Medline database.
Highlighted journals are those with full-text links from their Medline
citations.
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Full-text Resources
- Site: The Charters
of Freedom
Organization: National Archives and Records Administration
Location: Washington, DC
Country: United States
WWW: http://www.archives.gov/national-archives-experience/charters/charters.html
- The National Archives and Records Administration has the full
text of the Declaration of Independence, the United States Constitution,
the Bill of Rights, and the Constitutional Amendments. Highlighting
has been used to indicate passages that have been superseded or
repealed, thus making the documents current.
-
- Site: Thomas — Legislative Information
on the Internet
Organization: Library of Congress
Location: Washington, DC
Country: United States
WWW: http://thomas.loc.gov
- This site permits the monitoring of current legislation and contains
links to historical documents and the full-text legislative sites
for the Executive and Judicial branches of the federal government
as well as the legislatures of state and local governments.
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Teaching Resources
- Site:
Criteria for Assessing the Quality of Health Information on the
Internet--Policy Paper
Organization: Health Summit Working Group
Health Information Technology Institute
Mitretek Systems
Location: McLean, VA
E-mail: hiti@mitretek.org
WWW: http://hitiweb.mitretek.org/docs/policy.html
Country: United States
- The Health Summit Working Group, made up of librarians from public,
academic, medical, and special libraries, as well as information
professionals from government agencies, developed a set of criteria
for evaluating medical information on the Internet during a series
of meetings funded in part by the Agency for Health Care Policy
and Research (U.S. DHHS). The criteria specified include credibility,
sponsorship/authorship, content, audience, currency, disclosure,
purpose, design, interactivity, and caveats.
-
- Site: HON Code
of Conduct (HONcode) for Medical and Health Web Sites
Organization: Health on the Net (HON) Foundation
Location: Geneva
Country: Switzerland
WWW: http://www.hon.ch/HONcode/Conduct.html
- Originally published in July 1996, the HONcode has been amended
and expanded to eight principles, which are published on the site
in 11 languages. The code addresses: Aauthority
of the information, data confidentiality and privacy, proper attribution
of sources, transparency of financial authorship,@ and the clear separation of advertising
from editorial content.
-
- Site:
Information Quality WWW Virtual Library
Organization: Asia Pacific Research Online
Location: Research School of Asian and Pacific Studies (RSPAS)
Australian National University, Canberra,
Country: Australia
E-mail: tmciolek@coombs.anu.edu.au
WWW: http://www.ciolek.com/WWWVL-InfoQuality.html
- This site is a directory of links to reports, articles, publishing
guides, and evaluation standards for developing, maintaining, and
assessing information on the Internet. Of special interest is the
site=s annotated bibliography Evaluation
of Information Sources.
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